Este apartado está dedicado a las FAMILIAS. Cuando a alguno de nuestros hijos se les diagnostica alguna de estas enfermedades crónicas y muy incapacitantes (SFC, FM, SQM o SSC), la vida familiar cambia considerablemente.

Resulta muy duro en primer lugar aceptar el diagnostico, y después enfrentarnos a los cambios y adaptaciones que se deben hacer en la vida diaria: reducir al máximo los esfuerzos físicos y mentales, la exposición a determinados productos químicos que están presentes en cualquier entorno (escuela, casas de amigos, lugares de celebración de fiestas,…), etc…. Qué complicado nos resulta como padres ver a nuestro hijo así y tenerle que decir que ya no podrá hacer ciertas cosas que le encantaban (jugar un partido de fútbol con los amigos, o dar un paseo de unas horas por un centro comercial),  cuántas lágrimas derramadas en silencio.

Por todo esto, creemos que el apoyo de otros padres que están pasando o ya han pasado por todos los problemas a los que tenemos que hacer frente (adaptación escolar, discapacidad, familia numerosa,…) resulta muy reconfortante, y puede hacer el camino de piedras algo más llevadero.

Esperamos que el BLOG DE PADRES sea una herramienta útil, como punto de encuentro de padres e intercambio de experiencias.

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