Actividades

Resultado de imagen de actividades

Estamos comenzando a dar los primeros pasos. Nuestra primera actividad será:

  • Presentación de la Asociación: Se realizará el 13 de Mayo en el Hospital Vall d’Hebrón de Barcelona, coincidiendo con las XIII JORNADAS DE AVANCES EN SFC, que se celebran en el mismo lugar.

A partir de entonces iniciaremos el camino para poder ofreceros próximamente más actividades encaminadas a la divulgación de la enfermedad, ayuda y asesoramiento tanto para padres, familiares, amigos, educadores como profesionales sanitarios; pero ante todo, conseguir que se mejore la calidad de vida de los niñ@s y adolescentes que padecen SFC, FM o SQM.

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